Driving Discovery.
Transforming Lives.
Message from the President and CEO
Diana Gray, MA
President and Chief Executive Officer
Hydrocephalus Association
In 2024, we advanced our mission to find a cure for hydrocephalus and improve the lives of those affected by the condition. Our feature articles spotlight the extraordinary individuals whose dedication, expertise, and compassion have propelled our progress as an organization.
Since launching our Research Initiative in 2009, we have invested $16 million directly into innovative studies and collaborative networks. This investment has unlocked an additional $92 million in competitive grants from the NIH, the Department of Defense, and other foundations—bringing a total of $108 million into hydrocephalus research. These funds have fueled groundbreaking discoveries and advanced the search for better treatments and a cure.
Growing the Ecosystem
People Have Joined HAPPIER, Our Hydrocephalus Patient Registry
All-Time Grants Awarded
Compounds/Drugs Tested
Patents for Drug/Compound Approved
Invested in Research since 2009
Secured in Additional Funding by HA Researchers
Total Hydrocephalus Research Investment
At the heart of our mission is a commitment to improving the lives of people with hydrocephalus—and the families and caregivers who support them. For more than 40 years, we have provided hope through trusted resources, personal connections, and expert guidance. In 2024, our 18th National Conference on Hydrocephalus, HA CONNECT, welcomed 560 participants, offering them the opportunity to learn from leading clinicians, researchers, and advocates.
Support Touches
Community Network Meetings
HA Community Networks
Education Days HELD
Medical professionals
in HA's Physicians Directory
HA CONNECT ATTENDEES (337 NEW)
HA CONNECT SESSIONS
HA CONNECT Sponsors and Exhibitors
HA CONNECT Speakers
Raising awareness about hydrocephalus is vital—not only to connect people to life-changing resources, but also to help more individuals receive an accurate diagnosis, especially those with Normal Pressure Hydrocephalus (NPH). Our outreach efforts aim to ensure that everyone living with hydrocephalus can find the information, support, and services they need.
We continue to serve as the leading voice for the hydrocephalus community on Capitol Hill, championing increased research funding and representing the real needs of those living with the condition. Our advocacy ensures hydrocephalus remains a priority for policymakers and federal agencies.
In 2024, more than 7,600 participants joined us at 42 WALK events nationwide, raising over $1.8 million to drive research, provide resources, and foster community. The WALK remains a cornerstone of our mission—empowering families, building awareness, and fueling progress toward a cure.
Looking Ahead
Held across the US
helped raise money at a walk
participated in a HA Walk
Raised for Hydrocephalus research, support & education
We deeply appreciate the commitment of our Corporate Council partners, whose generous support helps us expand our mission programs and reach more people affected by hydrocephalus.
FINANCIALS
The Hydrocephalus Association has earned high marks from the GUIDESTAR, CHARITY NAVIGATOR, AMERICA’S BEST CHARITIES and the NATIONAL HEALTH COUNCIL. See all of our Charity Ratings. For more on our financials, visit our website.